Although Down’s syndrome and autism are known to the public, there are certain conditions that are not widely spoken about. This lack of awareness leaves patients and their families in a lurch, especially with no guidance available. This is exactly what happens in the case of Fragile X, an inherited condition, which leads to intellectual disability and autism sometimes.
It is this very thought that led to the creation of the Fragile X Society in 2003. Helmed by Shalini Kedia, this organization has been consistently working towards spreading awareness and uplifting families that have these patients.
To know more about her journey and efforts, watch the video!
(Interviewed by Geetika Sachdev; video produced and edited by Nang Tanvi)